In the first weeks of a home hospice stay, most transfers are done with two people, or with one person and a second pair of hands at the door. Then a day comes when the second person is at work, the chair is across the room, and the one person who is home lifts alone because the moment will not wait. Nobody decides this. It builds up.

Local option: New Plan Care gives families in the St. Louis area in-home help so a parent can stay home: companionship, help with bathing and dressing, meals, and overnight care. Call (314) 405-0887.

This piece is about noticing that drift before it becomes the rule. It does not teach you how to move a body. That is for the hospice therapist or aide to show you in your own room, with your own bed and your own chair.

What the drift sounds like

Listen for a few plain things. The second person is always coming in ten minutes. The bed was lowered for one person's back and never raised again. The move happens when the house is quiet, not when the team said it would. Someone describes the lift as 'we just do it,' and when you ask who, the answer is one name. Any one of these is small. Together they tell you the plan now depends on whoever happens to be in the house.

Write down who lifts, and when

For one week, keep a plain log on the fridge or the bedside table. Write the day of the week, the time, who was in the room, how many people did the move, and whether the belt was on and checked. Add a column for 'needed a second person and did not have one.' The log is not a case against anyone. Memory rounds the numbers toward what the family hoped was happening, and a page does not.

What to ask the hospice team

Ask the nurse or aide which transfers should always have two people. Ask which ones one person can do with the belt on and the chair set at a height you have marked. Ask who on the team will watch you do one, and when. Ask what happens on the day the second person does not show up. Then ask that the answers be written into the plan of care, since that is the document the team is expected to keep current under the federal hospice rule. If the answer is that the person should not be moved at all without help, ask what that looks like at two in the morning, when the bed is wet and no one else is awake.

What to check before every move

Check the path before you start: the floor clear, the chair locked, the bed brakes set, the rail position known, the belt fitted and not twisted. Mark the bed height you actually use, with a strip of tape on the frame or a note on the wall, so that it is not lowered for a single lift and then left there. A hospice visit covers the hour the aide is in the room. It does not cover Thursday night, and the house has to keep the same standard when the team is gone.

When the caregiver is the one at risk

Your back and your hands are part of the plan. If you are lifting alone and you are also the person awake every night, the drift is landing on you first. Say so to the team in a calm moment, not in the middle of a transfer. The hospice social worker can help you sort out which hours need another person, and the resources on the Local Help for Hospice Families page list where West County families have found that help. The Sources page lists the guides this site uses for caregiver safety and for the hospice rules behind the plan.

What the end of the week should give you

By the end of the log week, you should be able to answer three things: which moves need two people, who the second person is for each one, and what you do when that person is missing. Write the answers on one page and put it where the next person on the night shift will see it. If you cannot answer one of the three, that is the item to bring to the team before the next lift, not after the next fall.