The admission packet looks like one more stack of signatures, but it is the closest thing to a written promise the hospice will make you. Read it as an agreement with two sides. The agency commits to certain visits, supplies and contacts. The family commits to certain things too, such as keeping a working contact number, telling the team about changes and knowing what happens if the parent decides to stop receiving hospice care. Those two sides should match what you were told on the phone.

Local option: New Plan Care gives families in the St. Louis area in-home help so a parent can stay home: companionship, help with bathing and dressing, meals, and overnight care. Call (314) 405-0887.

What the agency has to list

Ask for the list of services the hospice covers for the illness, in writing, and set it beside the visit schedule the team gave you. Look for the items the agency says fall outside its coverage, such as certain equipment, medicine outside the hospice plan, or hired help beyond the team's visits. Ask which of those you would be billed for, what the amount is based on, and who to call about a bill. Those answers belong in the packet, not in a conversation you will have to recall later.

Who is named, and what they can sign

Check who is listed as the contact for the household. If the parent is not able to sign for themselves, the packet will say what document the agency requires from you, and it may ask for a copy. Ask which version of that document the agency accepts, and keep the original where a visitor can find it. Do not sign a form you do not understand on the first afternoon. Ask the team to walk through it line by line.

The door out

Every hospice packet should say how the parent may stop hospice care, and what the agency asks the family to do if they do. Ask what happens to the equipment, the visit schedule and any hired help on the day that decision is made. Ask who has to be told, and whether the agency will want the paperwork in its own form. You do not need to plan for that day to get the answer now.

Keep a complete copy of everything you sign, with the date you signed it written on the copy. The How We Write page explains how we check the rules these packets are meant to reflect.